tomsbrain

"Orbital’niy musor. Predateli, trusy. Myortvoye bessmert’ye."

38; UK

Last active:
1732738539

Mood: Thirsty

View my: Blog | Forum Topics

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SpaceHey URL:

https://spacehey.com/tomsbrain

tomsbrain's Interests

General	City life, nightlife, quiz nights, warm nights, scrabble games, creative aims. I am INTP-T for those who care, I do not but apparently it's rare. Pizza crusts, sweet stuff (there really should be a box just for food). Swimming laps, podcast apps. Music making, fresh baking! Scream, and pretty much anything on the big or small screen.
Music	According to last.fm my most played artists for the past 30 days were: Lolly; Kylie Minogue; Skunk Anansie, and Loreen.
Movies	According to letterboxd some of the most recent films I watched were: Inside Out 2, Carved, Smile 2, A Nightmare on Elm Street.
Television	According to Netflix the most recent shows I binged were: Emily in Paris; Reba; Scott Pilgrim Takes Off; Jujutsu Kaisen; Dead to Me.
Books	I am currently reading What We Don't Talk About When We Talk About Fat, by Aubrey Gordon.
Heroes

tomsbrain's Links

YouTube	youtube.com/@tomsbrain
Tumblr	tomwithfeeling.tumblr.com
Twitch	@ThomasMcNab
TikTok	@tomsbrain
Pinterest	@tomsbrain
Spotify	Spotify
Last.fm	@tomsbrain
Linktree	@tomsbrain
Ko-fi	@tomsbrain
Website	thomasmcnab.wordpress.com

tomsbrain's Latest Blog Entries [View Blog]

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tomsbrain's Blurbs

About me:

Hello, my name is Thomas John McNab. I turn thirty-nine next year and have lived my entire life with a genetic condition called Congenital Erythropoietic Porphyria. It’s a very are disease – little more than two-hundred people in the world live with this condition. Basically I have an allergy to sunlight. It affects my skin, causing blisters to appear on light exposed skin which causes blisters and scarring. I have suffered with it from birth. My parents, especially my mum, went through a tough time getting answers. Doctors said there was nothing they could do, just keep me out of the sun forever, separate me from my sister, and I'd live to be about 10-years-old. Public schools wouldn't accept me, and my mum had to fight tooth and nail basically every day to get people to see me as just another human being who deserves a chance at a life, no matter how short my time was going to be here. Nowadays, babies diagnosed with C.E.P. are given a Bone Marrow Transplant as soon as possible. I was thirteen when my sister donated her bone marrow – but it failed to cure me. C.E.P. affects the production of red blood cells, so to combat this, I receive blood transfusions. Initially, I had very few transfusions, but over time, my body became dependent on these blood transfusions and I now have one every three weeks. Hospital is a big part of my life, my dad even works there! But, away from the aspects of illness, I reckon I now have a relatively normal life. I live with my mum, step-dad, and dog in Leeds. I’ve an older sister, and she has three kids. My family have always been there for me, but recently I've had a wonderful new person in my life, my boyfriend Max. My sexuality is a relatively insignificant part of my life that all my family have been accepting of. They make thankful everyday, and despite living with an illness I actually kind of consider myself lucky to have this perspective on life.